Sharing resources
Improvement of patient outcome
Sharing resources
Improvement of patient outcome
The Galactosemia Network is dedicated to fostering progress in research, diagnosis, treatment, and follow-up care for patients with galactosemia. This is achieved through a collaborative approach involving various stakeholders, including clinicians, researchers, nutritionists, as well as patients and their families.
The GalNet welcomes the participation of clinicians and researchers from around the globe, with the shared goal of enhancing patient care worldwide.
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Upcomming event
November 15-17, 2024
Joint GalNet EGS Meeting
Patient registries are crucial for the successful development of therapies in rare diseases
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Within the GalNet a Guidelines Working Group developed guidelines for diagnosis, treatment and follow-up
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