11 oktober 2019

Joint EGS/GalNet meeting October 11-13, Amsterdam

The European Galactosemia Society (patients country representatives) and the Galactosemia Network (professionals country representatives) meet again in Amsterdam this year to work on our shared aim to improve the treatment and outcome of patients with Galactosaemia. Recent advancements regarding the GalNet registry, dissemination of classic galactosemia guidelines and therapy approaches will be discussed. In addition, several workshops have been organized on grant applications, patients knowledge improvement and understanding differences in outcome.