Governance
The GalNet organizational structure is composed of the GalNet Steering Committee, Advisory Board, and Country, Nutritionist and Patient Associations Representatives.
The GalNet was founded by the Steering Committee, which has administrative, scientific, legal and ethical responsibilities. All decisions taken by the Steering Committee are made with input from all other GalNet committees.
The Country and Nutritionist Representatives give scientific input and provide liaison between the GalNet and members.
The Patient Associations Representatives share personal experiences and opinions, and provide liaison between the GalNet and patients and families.
The Steering Committee is composed of M. Estela Rubio-Gozalbo (chair), Eileen P. Treacy (co-chair), Annet M. Bosch and Gerard T. Berry.
There is an annual meeting for all members in September, during the Society for the Study of Inborn Errors of Metabolism (SSIEM) Annual Symposium. Yearly, a joint meeting of GalNet country representatives and European Galactosemia Society (EGS) patient country representatives takes place hosted by the EGS.
The Steering Committee has regular conference calls.