Sharing resources
Improvement of patient outcome
The Galactosemia Network is dedicated to fostering progress in research, diagnosis, treatment, and follow-up care for patients with galactosemia. This is achieved through a collaborative approach involving various stakeholders, including clinicians, researchers, nutritionists, as well as patients and their families.
The GalNet welcomes the participation of clinicians and researchers from around the globe, with the shared goal of enhancing patient care worldwide.
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Upcoming events
August 26th, 6:00 pm to 8:00 pm Eastern European Time
GalNet satellite symposium and annual members meeting at SSIEM Helsinki
November 20-22, 2026
Joint GalNet EGS Meeting Amsterdam
Patient registries are crucial for the successful development of therapies in rare diseases
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Within the GalNet a Guidelines Working Group developed guidelines for diagnosis, treatment and follow-up
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