The Galactosemia Network is dedicated to fostering progress in research, diagnosis, treatment, and follow-up care for patients with galactosemia. This is achieved through a collaborative approach involving various stakeholders, including clinicians, researchers, nutritionists, as well as patients and their families.
The GalNet welcomes the participation of clinicians and researchers from around the globe, with the shared goal of enhancing patient care worldwide.

Our misson > 

Upcomming event
September 3rd, 2024, 10.45-13.15h
GalNet membersmeeting at the SSIEM venue


November 15-17, 2024 
Joint GalNet EGS Meeting 

Past events >

Patient registries are crucial for the successful development of therapies in rare diseases

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Within the GalNet a Guidelines Working Group developed guidelines for diagnosis, treatment and follow-up

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The GalNet research focuses on the improvement of patients outcome

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