Within the GalNet, a Guidelines Working Group has been formed. It is coordinated by Dr. Annet Bosch and is composed of 19 international experts from 9 countries.

Several key questions to be addressed in the guidelines have been formulated by European and USA expert clinicians, biochemists, nutritionists and representatives from patient associations.

consensus meeting was held in October 2015, in Amsterdam (The Netherlands), with the financial support of the Galactosemia Foundation.

The Guidelines have been recently published, and can be found here.