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GalNet

GalNet

GalNet

The Galactosemia Network

Links

Home › Links

Rare disease initiatives

 

European Comission expert on rare diseases

International Rare Disease Research Consortium - IRDiRC

Orphanet:

  • Classic galactosemia or Type I galactosemia
  • GALK deficiency or Type II galactosemia
  • GALE deficiency or Type III galactosemia

  • Galactosemia Patient Registry
 

National Organization for Rare Disorders - NORD:

  • Classic galactosemia and related disorders

EURORDIS

 

Patient Associations

 

Europe: European Galactosaemia Society - EGS

USA: Galactosemia Foundation

 

Australia: Australian Galactosaemia Support Network - AGSN

Midwestern USA: Galactosemia Association of Midwest America - GAMA

Minnesota (USA): Galactosemic Families of Minnesota - GFMN

Spain: Asociación Española para la Galactosemia - AEG

United Kingdom: Galactosaemia Support Group - GSG

 

 

 

 

 

 

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