Links
Tekst
Rare disease initiatives
International Rare Disease Research Consortium - IRDiRC
Orphanet:
- Classic galactosemia or Type 1 galactosemia
- GALK deficiency or Type 2 galactosemia
- GALE deficiency or Type 3 galactosemia
- Galactose mutarotase deficiency or Type 4 galactosemia
National Organization for Rare Disorders - NORD:
Patient Associations
Europe: European Galactosaemia Society - EGS
Netherlands: Dutch Galactosemia Society (GVN)
Spain: Asociación Española para la Galactosemia - AEG
United Kingdom: Galactosaemia Support Group - GSG
Midwestern USA: Galactosemia Association of Midwest America - GAMA
Minnesota (USA): Galactosemic Families of Minnesota - GFMN
Australia: Australian Galactosaemia Support Network - AGSN